The sister of famous Canadian singer Celine Dion has provided new details about her neurological disease, known as Stiff Person Syndrome (SPS, in English). In an interview she gave to 7 Jours mediaClaudette Dion said her sister “works hard, but she can no longer control her muscles.”

Debt already It was canceled at the beginning of 2023 All their tour dates are until next year, due to this situation, which, despite its effects, has not taken away their hopes: “In our dreams and your dreams, the goal is still for you to return to the stage,” Claudette added. .

The sister of the artist who sang the symbolic song at the end of the nineties My heart will go on As part of the film’s soundtrack TitanicShe explained that since vocal cords are also muscles, it was actually difficult for Celine to sing. But on social networks there are many more They questioned his statements They find it difficult to believe that the progress has been so sudden.

“It’s a one-in-a-million case, and scientists haven’t done a lot of research because it doesn’t affect a large number of people,” Claudette explained.

After the news, the family charity Maman Dion Foundation Claudette said that he did not stop receiving thousands of messages supporting the singer. “People tell us they love her and are praying for her.”

[Investigan una rara enfermedad que está afectando a perros y puede ser mortal]

Celine Dion, who suffered from painful, uncontrollable muscle spasms, revealed her diagnosis in December 2022, and canceled the dates of her European tour for February of this year, although in May she ended up suspending it completely.

Claudette qualifies in Another interview with Hello! Like his sister “A strong woman who does everything she can to recover.”While the family hopes that doctors will find “a solution to this terrible disease that has no cure.”

“There’s not much we can do to support her and relieve her pain,” Claudette explained, referring to her sister’s severe convulsions.

The Las Vegas-based singer has remained out of sight since she announced the cancellation of her tour.

What is stiff person syndrome?

This rare disease, which affects one in every million people, is a rare, progressive neurological disorder that causes muscle stiffness in the trunk, legs and torso, according to US National Institute of Neurological Disorders and Stroke.

The organization confirms that it also creates in patients “a greater sensitivity to stimuli such as noise, touch, and emotional disturbance, which can lead to muscle spasms,” causing “abnormal, often hunched and stiff postures.”

The syndrome causes those affected “may be unable to walk or move, or be afraid to leave the house” due to the noise present.

SPS affects twice as many women as men, and scientists still “don’t understand its causes”, although research claims it is “an autoimmune response that fluctuates in the brain and spinal cord”.