Celine Dion has announced in an emotional message that she is suffering from a rare, incurable neurological disease that will keep her off the stage.
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- BBC News World
Canadian singer Celine Dion has announced she is suffering from an incurable neurological disease that has sidelined her from the stage and caused her mobility problems.
In an emotional video posted on her Instagram account, the translator explains that doctors found her “Severe Person Syndrome”A rare autoimmune disease that affects the nervous system is “one in a million,” he explains.
“You know, I’ve always been an open book, and before I wasn’t open to saying anything, but now I am,” Dion says, fighting back tears.
translator “My heart will go onHe explains that he has been suffering from health problems for some time and until now, it was very difficult to face this challenge or talk about the difficulties he was going through.
“Although we’re still learning about this rare disease, we now know what’s causing the cramps I’ve been experiencing,” the 54-year-old singer admits.
The spasms, she explains, “affect all aspects of my daily life, sometimes making it difficult for me to walk.” syndrome It also affects your vocal cords.“I’m not allowed to use them like I used to.”
In the video, recorded in English and French, The translator speaks with emotion and affection to her followers, saying that she “misses a lot” and hopes to see her in person and on stage very soon.
However, Dion also announces that the tour, which was supposed to start in 2023 and take him through several European countries, will have to wait. The information accompanying the video confirms The programs will be rescheduled for 2024.
“I have a great team of doctors working with me to help me recover,” says the translator.Let’s talk about love“, who supports me and gives me hope “and has words for loving children.”
Celine Dion had three children with her husband and former music manager Rene Angelil, who died of throat cancer in 2016.
A disease that affects one in a million
Characterized by “severe person syndrome”. Fluctuating muscle stiffness in body and limbsand increased sensitivity to stimuli such as noise, touch and emotional distress, which can cause muscle spasms, as defined by the US National Institute of Neurological Disorders and Stroke.
People affected by this condition, who It affects twice as many women as men.They may have difficulty walking or moving, and often avoid leaving the house because street noises can trigger seizures and falls.
According to the American Institute, scientists still do not understand what causes this syndrome, along with other autoimmune diseases such as diabetes, thyroiditis, vitiligo and pernicious anemia.
The disease is so rare that it is often misdiagnosed as Parkinson’s, multiple sclerosis, fibromyalgia, psychosomatic illness, or anxiety and phobias.
Although it is a disease There is currently no cureMedications such as muscle relaxants may improve symptoms.
treatment
In the video, Celine Dion explains that she’s “working hard with my sports medicine therapist to get my strength and performance back,” though she admits it’s been a real “trial.”
“I know how to sing. That’s what I’ve done all my life. That’s what I love,” she says, her voice cracking.
Dion, the youngest of a family 14 brothers Hailing from the French-speaking Canadian province of Quebec, she began singing at a young age.
Her musical career spanned more than four decades, making her the queen of the romantic ballad.
Most of his international hits include the main theme of the film’s soundtrack, such as “Titanic” -Won the Oscar for Best Original Song in 1997- Sung in English, Dion She is the best-selling French-speaking actress of all time.
In a video posted on Instagram, Dion gets emotional as she addresses her followers.
“I miss you so much. I miss seeing you all, being on stage and performing for you,” admits the singer, who already had to cancel a tour in North America in January of this year.
Now, she says, “I have to focus on my health, and I believe I’m on the road to recovery.”
“I hope to see them very soon,” he concludes.
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